Keywords
Disabled people
Qualitative study
Education
Training
How to Cite
Abstract
Purpose This study aims to explore the current training status, challenges, and training needs of caregivers for persons with disabilities in residential care institutions.
Methods This study recruited caregivers, administrators, and service recipients from residential care institutions as participants. Data were collected through semi-structured interviews, analyzed using Colaizzi’s seven-step method for data organization and theme extraction, and the entire research process was conducted in accordance with the COREQ guidelines.
Results A total of 15 participants were interviewed, including 7 caregivers, 4 institutional managers, and 4 persons with disabilities. Data analysis yielded four major themes and 13 subthemes: 1) Adapting to occupational realities; 2) Optimizing training configuration; 3) Standardizing training implementation; 4) Emphasizing training outcomes and feedback
Conclusions The current training system for caregivers of persons with disabilities is in urgent need of improvement. It is recommended that systematic enhancements be made in training content, evaluation mechanisms, and ongoing support, in order to increase the practicality and relevance of training programs and better meet the growing demands for high-quality disability care services.
References
[1] World Health Organization: Draft WHO global disability action plan 2014-2021: better health for all people with disabilities. Geneva: World Health Organization; 2014.
[2] China Disabled Persons' Federation, Re-search Center on the Development of Un-dertakings for Persons with Disabilities: Annual Review of Disability Development and Social Progress in China. Beijing: Qiuzhen Press; 2023.
[3] China Disabled Persons Federation. The total number of persons with disabilities and number of different kinds and levels of disa-bility by the end of 2010. 2010. [http://www.cdpf.org.cn/sjzx/cjrgk/201206/t20120626_387581.shtml]
[4] Lin ZC. An Analysis of the Current Situation and Improvement Paths of Residential Care for Persons with Disabilities: An Empirical Study Based on Guangzhou. 2019; (01):76–80.
[5] General Office of the China Disabled Per-sons' Federation. Notice on the Implementa-tion Plan of the "14th Five-Year" Sunshine Home Program—Residential Care Service Project for Persons with Intellectual, Mental, and Severe Physical Disabilities. 2021. [https://www.gov.cn/zhuanti/2021-09/10/content_5650825.htm]
[6] China Disabled Persons' Federation. Statisti-cal Bulletin on the Development of Programs for Persons with Disabilities in 2023. 2024. [https://www.cdpf.org.cn/zwgk/zccx/tjgb/03df9528fdcd4bc4a8deee35d0e85551.htm]
[7] Havercamp SM, Scott HM. National health surveillance of adults with disabilities, adults with intellectual and developmental disabili-ties, and adults with no disabilities. Disabil Health J 2015; 8(2):165-172.
[8] Sawan MJ, Wennekers D, Sakiris M, Gnjidic D. Interventions at Hospital Discharge to Guide Caregivers in Medication Manage-ment for People Living with Dementia: a Systematic Review. J Gen Intern Med. 2021; 36(5):1371–1379.
[9] Van Houtven CH, Konetzka RT, Taggert E, Coe NB. Informal And Formal Home Care For Older Adults With Disabilities Increased, 2004-16. Health affairs (Project Hope). 2020; 39(8):1297-1301.
[10] Hu H, Hu X, Xu Y. Caring load and family caregivers' burden in China: the mediating effects of social support and social exclusion. Front Public Health. 2023; 11:1194774.
[11] Johar M, Maruyama S. Intergenerational co-habitation in modern Indonesia: filial sup-port and dependence. Health Econ. 2011; 20 Suppl 1:87-104.
[12] Su Z, Hu Z, Peng X. The impact of changes in China's family patterns on family pension functions. Int J Health Plann Manage. 2017; 32(3):351-362.
[13] Kayaalp A, Page KJ, Rospenda KM. Care-giver Burden, Work-Family Conflict, Fami-ly-Work Conflict, and Mental Health of Caregivers: A Mediational Longitudinal Study. Work Stress. 2021; 35(3):217-240.
[14] Zhan HJ, Liu G, Guan X, Bai HG. Recent de-velopments in institutional elder care in China: changing concepts and attitudes. J Aging Soc Policy. 2006; 18(2):85-108.
[15] Chen N, Li X, Yuan N, Zhou CC, Wang CQ. Utilization willingness of institutional care between disabled and non-disabled seniors: evidence from Jiangsu, China. BMC Health Serv Res. 2019; 19(1):410.
[16] Huang W, He B, Wang YH, Ma WJ, Zhou J. Disability Severity and Home-Based Care Quality in Older Adults: The Mediating Ef-fects of Social Support and Caregiver Com-petence. J Nurs Res. 2020; 28(6):e122.
[17] Swinkels JC, van Tilburg TG, Broese van Groenou M. Why do spouses provide per-sonal care? A study among care-receiving Dutch community-dwelling older adults. Health Soc Care Community. 2022; 30(4):e953–e961.
[18] Liu ZQ, Tan QY, Yang QY, Feng Y, Lü F. A Study on the Operation Mechanism and the Care Service for the Persons with Disabilities in China. Disability Research. 2020; (02):3–11.
[19] Ye Y. A study on the Status Quo, Difficulties and Development Paths of Rehabilitation Service Institutions for Disabled Peo-ple——Taking the City of Nanjing as an Example. Modern Special Education. 2018; (6):76–79.
[20] Zhao SH, He B, Tang XT, Wang XL, Zhang MM, Zhou J, Wang YH. Effect of disability severity on home-based care quality among families with Uygur and Kazakh disabled older adults in far western rural China: A cross-sectional study. Int J Nurs Pract. 2022; 28(6):e13082.
[21] Zhang X. Construction of a Home-Based Service System for Persons with Severe Dis-abilities in Rural Areas — Based on Survey Data from Northeast China. Economic Per-spective (First Half Monthly). 2015; (4):60–65.
[22] Gao M, Zhang Y, Tian Y, Gao Y, Li X, Lu Y. A qualitative exploration of Chinese rural older adults' adaption experience to disability in Henan Province. BMC Public Health. 2023; 23(1):512.
[23] Li C, Chen DS. Family Caregiving Burden and Policy Support for Severely Disabled Persons in Rural Areas of China. Disability Research. 2021; (2):3–11.
[24] Zhao JL. The Current Situation of Elderly Persons with Disabilities in China and Ex-ploration of the Long-Term Care System. Chinese Journal of Gerontology. 2014; 34(10):2907–2910.
[25] Song S, Yuan B, Zhang L, Cheng G, Zhu W, Hou Z, He L, Ma X, Meng Q. Increased Ine-qualities in Health Resource and Access to Health Care in Rural China. Int J Environ Res Public Health. 2018; 16(1).
[26] Sandelowski M. Sample size in qualitative research. Research in Nursing & Health. 1995; 18(2):179-183.
[27] Stufflebeam D. The relevance of the CIPP evaluation model for educational accounta-bility. Journal of Research and Development in Education 1971, 5(1):19-25.
[28] Colaizzi PF. Psychological Research as the Phenomenologist Views It. In: Valle, R.S. and Mark, K., Eds., Existential Phenomenological Alternatives for Psychology. New York: Ox-ford University Press; 1978.
[29] Lincoln YS, Guba EG: Naturalistic inquiry. Beverly Hills, Calif.: Sage Publications; 1985.
[30] Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6):349-357.
[31] Yang G, Wan L, Dong H, Liang X, He Y: Uti-lisation willingness for institutional care by the disabled elderly and its influencing fac-tors based on Andersen's model: a cross-sectional survey of Henan, China. BMJ Open. 2022; 12(12):e064949.
[32] Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psycholog-ical health and physical health: a me-ta-analysis. Psychol Aging. 2003; 18(2):250–267.
[33] Nolan M, Grant G. Helping ‘new carers' of the frail elderly patient: the challenge for nurses in acute care settings. J Clin Nurs. 1992; 1:303–307.
[34] Berg-Weger M. Role induction and caregiver strain. J Soc Serv Res. 1996; 21:33-53.
[35] Feeney JA, Hohaus LC. Attachment and spousal caregiving. Personal Relationships. 2001; 8:21-39.
[36] Zheng QL, Tian Q, Hao C, Gu J, Lu-cas-Carrasco R, Tao JT, Liang ZY, Chen XL, Fang JQ, Ruan JH, Ai QX, Hao YT. Compar-ison of attitudes toward disability and people with disability among caregivers, the public, and people with disability: findings from a cross-sectional survey. BMC public health. 2016; 16(1):1024.
[37] Zheng QL, Tian Q, Hao C, Gu J, Lu-cas-Carrasco R, Tao JT, Liang ZY, Chen XL, Fang JQ, Ruan JH, Ai QX, Hao YT. The role of quality of care and attitude towards disa-bility in the relationship between severity of disability and quality of life: findings from a cross-sectional survey among people with physical disability in China. Health Qual Life Outcomes. 2014; 12:25.
[38] Zhong Y, Wang J, Nicholas, S. Social support and depressive symptoms among family caregivers of older people with disabilities in four provinces of urban China: the mediating role of caregiver burden. BMC geriatrics. 2020; 20(1):3.
[39] Rhoades DR, McFarland KF. Purpose in life and self-actualization in agency-supported caregivers. Community Ment Health J. 2000; 36(5):513–552.
[40] Wu F, Li XJ, Sun JL. Research on the High-Quality Development Path of Disability Service Institutions from the Perspective of Social Support Theory: A Case Study of “Home for Persons with Disabilities” in Nan-jing. Modern Special Education. 2023; (10):42–47.
[41] Song JJ, Gu DZ, Cheng Y, Lou CY, Zhang PY. Research on the Construction of Basic Public Service for the Disabled Standard System in Zhejiang Province. China Standardization. 2022; S1:330–336.
[42] Li XH. An Analysis of the Current Develop-ment Status and Trends of Community Nurs-ing for Persons with Disabilities. Practical Clinical Nursing Electronic Journal. 2019; 4(48):196.
[43] Feng SW, Ren ZB. Current Situation and Na-tional Standard System of Care and Support-ive Service for Persons with Disabilities in China. Disability Research. 2017; 3:13–21.
[44] Liu Y, Li H, Wu B, Liu X, Chen H, Jin HY, Wu C. Association between primary caregiver type and mortality among Chinese older adults with disability: a prospective cohort study. BMC geriatrics. 2021; 21(1):268.
[45] Amjad H, Mulcahy J, Kasper JD, Burgdorf J, Roth DL, Covinsky K, Wolff JL. Do Care-giving Factors Affect Hospitalization Risk Among Disabled Older Adults? J Am Geriatr Soc. 2021; 68(1):129–139.
[46] Dich N, Lund R, Hansen ÅM, Rod NH. Men-tal and physical health effects of meaningful work and rewarding family responsibilities. PloS one. 2019; 14(4):e0214916.
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